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Persons with lived experience and Knowledge Users

Together with our partners we formed an advisory committee. Committee members include older adults living with dementia; their family/friend caregivers; representatives of organizations who advocate for older adults and their families (Alzheimer Societies, family caregiver organizations, CanAge); day program staff, managers, and operators; and health policy decision makers. This advisory committee has agreed on the research questions and design and will collaborate with researchers on informing each phase of the research. 

Committee role:Name of committee member:
Helen Carswell Chair in Dementia Care, chair of committeeMatthias Hoben
Dean of YorkU Faculty of Health or designateChris Ardern (Associate Dean, Research and Innovation)
Representatives of the Alzheimer Society of YorkKari Quinn-Humphrey (CEO)

Andrea Ubell (Program Director, ASY dementia day programs, co-chair of committee)
Representative of the Alzheimer Society of OntarioCathy Barrick (CEO)
ON Ministry of HealthMaria Singh
ON Ministry for Seniors and AccessibilityDon Embuldeniya (Director, Policy & Partnerships Branch, Policy Programs & Strategic Partnerships Division)
Individuals living with dementiaJim Mann
Family Caregiver AdvocatesSam Peck (CEO, Family Councils of Ontario)

Lauren Bates (Chair, Ontario Caregiver Coalition)
Family CaregiversShelley Resaul-Nowrattan

Anne Vatistas

Patti Reed
Research scientistTamara Daly, Professor, Director, York University Centre for Aging Research and Education (YU-CARE), Director, SSHRC Partnership for Age-Friendly Communities within Communities
Day program representativesMelanie Rowe, Vice President, Client Care and Services, CHATS-Community & Home Assistance to Seniors

Becky Clark, Director, McCormick Dementia Services in London, Ontario

Chantelle Morello, Thornhill D.A.Y. Centre Program Manager

Laura Letassey, Aurora D.A.Y. Centre Program Manager

Cassandra Calbert, MSW, RSW, Senior Social Worker
Carswell Fellows (trainees); ex officio membersHung Nguyen (post-doctoral trainee)

Atiqur Rahman (post-doctoral trainee)

Genevieve Odoom (PhD student)

Behnoush Zarandi (PhD student)
Caregiver Advisors:Name of Caregiver Advisor:
Linda Woo

Katrina Prescott


Bernie McCracken


Patricia Kostyk


Kevin Lazaruk


Ron Beleno

Our work is supported by a number of Cross-Provincial Partners including:

NameOrganization
Heather CookeAlzheimer Society of British Columbia
Sarah WuAlzheimer Society of British Columbia
Barb MacLeanFamily Caregivers of British Columbia
Aaron MillerInterior Health Authority
Michelle SmithInterior Health Authority
Jessica HowardInterior Health Authority
Karen LittletonInterior Health Authority
Ali CadaAlzheimer Society of Calgary
Barb FergusonAlzheimer Society of Calgary
Cassi WadsworthAlberta Health Services
Michelle PodmoreAlberta Health Services
Jennifer SaltAlberta Health Services
Suzanne MaiseyAlberta Health
Allison LaceyGovernment of Alberta
Erin CrawfordAlzheimer Society of Manitoba
Agnieszka San JuanWinnipeg Regional Health Authority
Joanne Di NicolaWinnipeg Regional Health Authority
Laurel RoseWinnipeg Regional Health Authority