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Mission & Vision

Our MISSION is to to maximize the quality of life for all individuals living with dementia, their family/friend caregivers, and quality of work-life of their care staff by evaluating and improving the effects of dementia care programs on individuals with dementia, their family/friend caregivers, and the health system. Our VISION is a society in which all people living with dementia and their caregivers receive the supports they need in order to enjoy the best possible quality of life.

Picture from Alzheimer Socity of York Region Party. From left to right: Loren Freid, Dr. Allen Carswell, Andrea Ubell & Dr. Matthias Hoben.

From left to right: Loren Freid, Dr. Allen Carswell, Andrea Ubell & Dr. Matthias Hoben

My main goal over the past few years was a simple one, that Helen will never be forgotten

— Dr. Allen Carswell

Profile picture of Dr. Matthias Hoben.

Matthias Hoben, Dr rer medic, MScHN, RN


Associate Professor & Helen Carswell Chair in Dementia Care
School of Health Policy and Management


Associate Member, YorkU Graduate Program in Nursing


Adjunct Assistant Professor, Faculty of Nursing, University of Alberta


Former Alzheimer Society of Canada New Investigator (2020-2023)


Message from the chair:

I am honoured and excited to serve as the Helen Carswell Chair in Dementia Care. As a nurse, I have always been passionate to improve the lives of those living with dementia, their family/friend caregivers, and their paid care providers. Over the course of a five-year term, I conduct research that will contribute to this vision and mission.

In my research, I partner closely with a large, interdisciplinary team of international researchers and trainees, as well as with persons with lived experience (older adults living with dementia and their families/friends), their advocates (e.g., Alzheimer Societies, Family Caregivers Organizations), knowledge users (day program staff, managers, operators, and health policy decision makers). This interdisciplinary and partnered approach to research ensures my research is meaningful and impactful to those most affected by it, and it maximizes its potential to influence policy and practice.

In collaboration with the Alzheimer Society of York Region, York University, University of Alberta, health policy decision makers, dementia and family/friend caregiver advocates, and individuals living with dementia and their caregivers, we work to honor the legacy of Helen Carswell by making a difference in the lives of individuals living with dementia and their caregivers.

My program of research focuses on maximizing the quality of life (QoL) for all individuals living with dementia, and their family/friend caregivers, as well as, improving the quality of work-life of their care staff. In July 2022, I was awarded the Helen Carswell Chair in Dementia Care by the School of Health Policy and Management, Faculty of Health, York University. I have been trained as a nurse (licensed to practice in Germany and Ontario), nursing manager, and health services researcher with a strong focus on knowledge translation and implementation research. My research applies an integrated knowledge translation model. That means that – in addition to an international and interdisciplinary team of researchers and trainees – my team includes a national group of over 30 people with lived experience (older adults with dementia and their family/friend caregivers), their advocates (representatives of Alzheimer Societies and family caregiver organizations), and key knowledge users (care staff, managers, health system and government policy makers). This group is involved in all steps of the research process. My research has focused on a range of continuing care settings, including nursing homes, assisted living (supportive living/retirement homes), adult day programs, and community/home care. I am particularly interested in the impact of social determinants of health, organizational contexts (work environments), and health system policies on the care and QoL of individuals with dementia, and on those who care for them. My research has involved large, population-based health administrative data, primary survey and clinical assessment data linked with health administrative data, semi-structured interview and focus group data, mixed methods, and literature reviews. I am also a co-investigator on the Translating Research in Elder Care (TREC) program of research, led by Dr Carole Estabrooks, University of Alberta.

Study team members:

Name:Position:Contact:
Emily DymchukResearch Coordinatoredymchuk@yorku.ca
Kyle CorbettResearch Coordinatorkylecorb@yorku.ca
Stella MedvedyukResearch Coordinatorstellam2@yorku.ca
Gabriel John DusingData Analystgabedus@yorku.ca
Soroush ShiraziResearch Assistantsoroush9@yorku.ca
Casey ArguellesResearch Assistantcarguelles@alzheimer-york.com

Hoben, M., Nguyen, M. H., Ubell, A. (2024). Improving support for adult day programs caring for persons living with dementia in the York Region: A policy brief targeting health authorities. York University.

Ontario Caregiver Coalition. (2024). Policy brief 1: Building a better Ontario by listening to the voices of caregivers. June, 2024.

Ontario Caregiver Coalition. (2024). Policy brief 2: Building a better Ontario by alleviating the financial hardship of caregiving. September, 2024.

Ontario Caregiver Coalition. (2024). Policy brief 3: Building a better Ontario for caregivers by providing mental health supports. December, 2024.

Bonvissuto, K. (2024). Increase in antipsychotic prescribing for residents with dementia raises concerns. McKnights Senior Living Blog, citing and discussing the practice implication of a paper that Dr. Hoben was the senior author on. https://www.mcknightsseniorliving.com/home/news/increase-in-antipsychotic-prescribing-for-residents-with-dementia-raises-concerns/, January 9, 2024.

The B.R.A.I.N.S. Project (2023). Let’s Get Real with Matthias Hoben. Podcast episode on dementia. https://www.instagram.com/p/CzmaIdaOVIV/, November 13, 2023.

Jankowski, N. (2023). Caregiver: Professor Matthias Hoben inaugurates a new endowed Chair in Dementia Care. York University Magazine, 2023(summer).

YFile (2022). Professor Mattias Hoben named Helen Carswell Chair in Dementia Care. Newsletter article from November 25, 2022.

Stolte, E. (2021). Alberta needs to know if staffing crunch, profit motive made outbreaks worse. Article in the Edmonton Journal that featured Prof. Hoben’s research. Edmonton Journal, January 26, 2021

Rutherford, G. (2021). COVID-19 restrictions may be even harder on people in assisted living than those in long-term care: U of A nursing researcher – New study seeks input from family members and facilities to understand impact, plan for next pandemic. Folio, January 13, 2021.

Hoben, M., Maxwell, C., Baumbusch, J., Hogan, D. (2020) Opinion: COVID's impact on assisted living homes is being overlookedEdmonton Journal, November 19, 2020. (Article was re-printed by theCalgary Herald and the Vancouver Sun.)

How are COVID restrictions impacting those living in long-term care? Radio interview with CFAX 1070, Adam Stirling, November 23, 2020.

Hoben, M., Estabrooks, C.A. (2019). More community care leads to shorter stays in nursing homes. OpinionThe Toronto Star, July 14, 2019. (Article was re-printed by Kindersley Clarion, West-Central Cross Roads, Calgary's Business, Troy Media, Brandon Sun, Langenbourg Four-Town Journal, Winnipeg Free Press.)

Alzheimer Society of York Region: Retirement Tribute and Donor Recognition

Tribute to retiring CEO Loren Freid and the recognition of donors and their impact for the Alzheimer Society of York Region.

Funded by the Carswell Family Foundation and the Canadian Institutes of Health Research, the Helen Carswell Chair in Dementia Care collaborates with numerous partners to generate much-needed evidence and to improve the quality of life for both, individuals living with dementia, and their family/friend caregivers. These partners include:

Carswell Family Foundation logo

Alzheimer Society of York Region logo
York University Health Department logo

Participate and Learn More

If you would like to learn more about our ongoing studies or explore opportunities to participate, contact us today.